ʻO ka hale hoʻokipa keiki a MOMO Vienna kamaliʻi a me ka hui palliative a nā keiki
Noho nā keiki 800 a me nā poʻe ʻōpio me ka maʻi pōkole i ke ola ma ka ʻāina ʻo Wina nui aʻe. Ma kahi o 100 o kēia mau maʻi ʻōpio e mālama mau ʻia e ka hale hoʻokipa keiki a Vienna a me ka hui mālama palliative keiki, MOMO. Ke hana nei nā hopena maikaʻi o kēia kākoʻo ma mua o ka poʻe i hoʻopilikia ʻia a me ko lākou mau ʻohana, e like me ka ʻepekema o ke Kulanui o Economics a me ʻOihana i ʻike ʻia.
Ua hele a kākoʻo ʻo MOMO ma mua o 350 mau keiki maʻi nui a me ka poʻe ʻōpio i loko o nā makahiki ʻehiku mai kona hoʻokumu ʻia ʻana. Ke kipa aku nei nā hale hoʻokipa o nā keiki a me nā kime palliative a nā keiki ma kahi o 100 mau ʻohana ma Vienna. "ʻO kā mākou pahuhopu nui ka mea e hiki ai i nā mea maʻi liʻiliʻi ke noho i ka home me ko lākou mau ʻohana ma o ke kākoʻo olakino a me ka therapeutic maikaʻi loa," i wehewehe ʻo Dr. ʻO Martina Kronberger-Vollnhofer, ka mea hoʻokumu a me ke poʻo o MOMO. ʻOihana ka hui-ʻoihana i hiki i kēia ke kūleʻa. ʻO nā kauka Pediatricians a me nā lāʻau lapaʻau palliative, olakino a me nā kahu maʻi, nā limahana kaiaulu, psychologists olakino, physiotherapists a me nā mea hoʻomaʻamaʻa mele, he kahunapule a me nā kahu lawelawe manawaleʻa 48 e kākoʻo i nā ʻohana me ka lāʻau, therapeutically, psychosocally a me kā lākou hana maʻamau i kēlā me kēia lā.
"Ke kamaʻilio mākou e pili ana i ka palliative keiki a me ka hana hoʻokipa keiki, ke kamaʻilio nei mākou e pili ana i ka hele ʻana o ke ola āpau i hiki i kekahi manawa ke hala i kekahi mau pule, akā maʻamau ka nui o nā mahina, ʻoiai he mau makahiki," koʻikoʻi Kronberger-Vollnhofer. "E pili ana i ka hui pū ʻana, e pili ana i ka hoʻoikaika ʻana, e pili ana i ka hoʻopā ʻana a me ka hoʻopā ʻana, pili ia i nā manawa maikaʻi he nui i ke ola o kēlā me kēia lā, ʻoiai ʻoiai aia nā pilikia āpau."
Hoʻonui ka hana hoʻokipa keiki i ke kaiāulu
Ua hana nā ʻepekema i ka Center Compence for Nonprofit Organisations a me ka Social Entrehiphip ma ke Kulanui o Economics a me ʻOihana ʻo Vienna i kēia manaʻo ʻōnaehana i kahi hoʻomaka no kā lākou loiloi. Ma o nā kamaʻilio pilikino ʻana i hui pū ʻia me kahi ana pūnaewele, ua hoʻopaʻa lākou i ka waiwai i hoʻohui ʻia e pili ana i nā hana a nā hale hoʻokipa a nā keiki a me ka hui palliative a nā keiki ʻo MOMO. Ua kālele ka poʻe noiʻi ma ka lima hoʻokahi ma ka hale hoʻokipa pediatric a me ka mālama palliative ma Vienna, ma ka lima ʻē aʻe ma nā hui kikoʻī o ka poʻe a me nā hui.
"Ua hōʻike akāka kā mākou loiloi i nā hopena maikaʻi o ka hana a MOMO i ka hopena ma mua o nā ʻohana e pili pono ana," e hoʻokūpaʻa ana nā mea kākau ʻo Flavia-Elvira Bogorin, Eva More-Hollerweger a me Daniel Heilig i ka lōkahi. He kuleana nui ʻo MOMO i loko o ka ʻōnaehana holoʻokoʻa o ka hānai pediatric a me ka mālama palliative a hāʻawi i kahi kōkua nui i ka mālama ʻana i ka ʻōnaehana.
"ʻO ka mea e kupaianaha ana, ʻo ia nō ka stigmatization ikaika o ka huaʻōlelo palliative a me ka hale hoʻokipa ma ka laulā a me ka paepae kiʻekiʻe kiʻekiʻe e pili ana i nā keiki," i hoʻokūpaʻa ʻo Eva More-Hollerweger. "ʻO ke kamaʻilio ʻana e pili ana i nā keiki maʻi nui ka mea i pale ʻia i ke kaiāulu."
Pono mākou e nānā e hoʻomaikaʻi i ke ola o nā keiki maʻi nui
ʻO Martina Kronberger-Vollnhofer a me kāna hui e ʻike i kēia kokoke i kēlā me kēia lā. ʻO ia ke kumu e hōʻoiaʻiʻo ai ʻo ia: No nā ʻohana MOMO, ʻo ka noho ʻana me ka maʻi ka ʻāpana o ke ola o kēlā me kēia lā. ʻO kā mākou hana maʻamau ka ʻimi i ka nui o ka hiki i loko o kēia maʻi a pehea e hiki ai iā mākou ke hoʻomaʻalahi i ke ola a me ka nani o nā mea āpau. "
ʻO ia ke kumu i kākoʻo ai ʻo Kronberger-Vollnhofer i ka hoʻonui ʻana i ke komo ʻana o nā keiki maʻi nui i ka nohona kaiaulu. "He kuleana like kāu e ʻike ʻia ai a ʻae ʻia e like me nā keiki ʻē aʻe." I mea e hoʻokumu ai i kēia wahi kaiaulu, makemake ʻo ia e hoʻoikaika i ke kūkākūkā lehulehu e pili ana i kēia kumuhana. Ma hope o nā mea āpau, ka nui o nā keiki maʻi maʻi a no laila ke piʻi nei ka pono no ke kākoʻo mālama palliative i kēlā me kēia makahiki. Ma muli o ka holomua o ke olakino olakino o nā makahiki i hala iho nei, ʻo ka nui a me ka nui o nā keiki e maʻi mau nei mai ka wā hānau a koi ʻia ka mālama nui, hiki ke ola lōʻihi me ko lākou maʻi.
"No laila e nui a nui aku nā ʻohana e pono ke kākoʻo mai nā hui e like me MOMO. ʻO ka hopena nui o ka hoʻopaʻa ʻia ʻana ka hāʻawi ʻana o MOMO i nā ʻohana e pili ana i ke ola ʻana o ke ola ʻoi aku ka maikaʻi, no ka mea, lawelawe ʻia ko lākou mau pono me kēlā me kēia kanaka a me ka ʻike nui, "wahi a More-Hollerweger. "No kēia kumu, he mea nui e hoʻokuʻu i nā pilikia o nā lāʻau palliative pediatric a me nā hale maʻi o nā keiki mai kā lākou stigma o ka mālama maʻi kūikawā wale nō."
ʻO ka ʻike nui aʻe i ka pono o nā wahi hoʻokipa a nā keiki a me ka mālama olakino palliative no nā keiki a me nā ʻōpio hiki ke alakaʻi i nā kauka a me nā kahu hānai e hoʻoholo e komo i kēia mea nui. "Ke ʻimi wikiwiki nei mākou i nā hoa hana me ka hoʻomaʻamaʻa loea e hoʻonui i kā mākou hui kauka a me nā kahu hānai," e hoʻomaopopo ana iā Kronberger-Vollnhofer.
ʻO nā kamaʻilio me nā kauka a me nā kahu hānai mai ka hui MOMO e hōʻoia i kahi kiʻekiʻe loa o ka hauʻoli o ka hana, e like me ka hopena o ka loiloi. Akā ʻaʻole wale lākou, ʻo nā hui ʻē aʻe o nā poʻe a me nā hui i ʻike a ʻike i nā hopena maikaʻi ma o ka hoʻokō ʻana o ka hale hoʻokipa a nā keiki a me ka hui palliative a nā keiki MOMO.
No ka ʻike hou aku e pili ana i ka hale hoʻokipa hānai keiki a MOMO Vienna a me ka hui palliative a nā keiki
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ʻO Susanne Senft, susanne.senft@kinderhospizmomo.at
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